Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Wednesday, April 22, 2015

Lincoln's appointment today

Today was a great day- my baby boy had an awesome Cardiology appointment! This was our first one with our new cardiologist, and he is exactly what we have been wanting all along. He even won Lincoln over within the first two minutes of the appointment! 

 They did a very thorough Echo ultrasound, and Dr. Chris said his mitral valve looks great, his tricuspid valve is still leaking, but minimally, and doing much better with the new valve. He also said we may not have to replace this valve until he is a teen! That would be such a great gift! 

His bandage came off completely today, and Dr. Chris said his incision looks great and all of his wounds are healing nicely. It takes my breath away every time I see his chest. Lincoln was very distraught over it. He said it is yucky and he doesn't like it. It was devastating to hear him say that.  He has been through so much, and I do hope as it heals and doesn't look so raw, he can be proud of it as a symbol of the tough little dude he is. A scar that tells his story and what a miracle he really is. 

This mom is very excited for no more sponge baths, and he can take a real bath tomorrow! I can hardly wait. We still cannot lift him underneath the arms for two more weeks, but he is doing great! Thank you for your prayers and positivity! Xoxo 

Thursday, April 2, 2015

Follow-up with Dr. Haw

Lincoln had his follow-up with Dr. Haw today. He had an X Ray of his chest, an EKG, & Dr. Haw looked at his chest wounds. Everything looked great, which is great news. That means no more LASIK  & Lincoln doesn't have to go back to see Dr. Haw for awhile! 

We also switched cardiologists, and we will now be seeing Dr. Chris Ratasami, who was great with Lincoln throughout our stay at HDVCH. He is a cardiologist as well as an Electro- Physicist, and clearly cares for his Lincoln's well-being.  We will be seeing Dr. Ratasami in two weeks and having another follow up echo ultrasound. That will be Lincoln's sixth echo this year! 

Dr. Haw is concerned with Lincoln's calorie intake and wants us to encourage eating any time and anything at this point. Lincoln has never been a great eater, so that will be a challenge finding what he likes and will eat a lot of! 

Home care has been getting gradually better. Katie & my mom have been a huge help with the one-on-one care for Lincoln and the other boys. I really could not have gotten through this week without their help. Lincoln is still not walking much, and he wants to be carried most of the time. I am sure I will wish this time back when I am trying to slow him down in a few weeks!