We also switched cardiologists, and we will now be seeing Dr. Chris Ratasami, who was great with Lincoln throughout our stay at HDVCH. He is a cardiologist as well as an Electro- Physicist, and clearly cares for his Lincoln's well-being. We will be seeing Dr. Ratasami in two weeks and having another follow up echo ultrasound. That will be Lincoln's sixth echo this year!
Dr. Haw is concerned with Lincoln's calorie intake and wants us to encourage eating any time and anything at this point. Lincoln has never been a great eater, so that will be a challenge finding what he likes and will eat a lot of!
Home care has been getting gradually better. Katie & my mom have been a huge help with the one-on-one care for Lincoln and the other boys. I really could not have gotten through this week without their help. Lincoln is still not walking much, and he wants to be carried most of the time. I am sure I will wish this time back when I am trying to slow him down in a few weeks!