Wednesday morning

Lincoln has had some setbacks. Last night, he developed a fever, and was having abdominal pain. He had blood in his stool, and a lot of fluids coming out of him. Today, they are giving him an ultrasound to check out his abdominen and liver because they have seen a decline in how they are functioning. Sometimes in surgery, they can be affected by the lack of oxygen. Also, his blood is not clotting the way it should be, so Hematology is coming up today as well. It is obvious that he is in a lot of pain, and we need to figure out why. The good news is Dr. Haw is very pleased with how his heart is functioning, and the small leak is being treated well with meds.  He also seems to be resting better and longer though, which is so much better for him (and us!).

The care here has been great. He has a nurse in his room 24-7, and there is a doctor who circulates every hour or so. Every morning, a round of doctors, nurses, and Dr. Haw come to check on him and discuss his case. The room has glass doors, which is right across from the nurse station, so he can be watched by others as well.  He sleeps in a normal-sized hospital bed, which makes his small frame look even smaller. I have to say that it has been difficult not knowing what to do for my baby. As a mom, I always felt I knew best, but here, I am pretty helpless. I did have a great Mommy moment yesterday though and suggested they swaddle him loosely to make him feel more secure, and it has made a tremendous difference. It has been challenging to trust others to make the best decisions for my baby. Thankfully, I know he is in God's Hands, and I ultimately trust in Him.

Lincoln needs a lot of prayers right now because his situation can go from bad to worse, or bad to good. Please pray for his sweet body to heal fast and well. I will never again take for granted his sweet smile and being able to hold him in my arms. They feel so empty, and so does our home. We all cannot wait for him to be healthy and home.