Lincoln had his breathing tubes taken out this afternoon, and he has been very sleepy. They are adjusting his pain meds to try to keep him pain-free, but also to have some more wakeful periods. The good news is that he looks peaceful in his sleep and breathing. We took the opportunity to be home with the big boys and get some rest. The house does not feel the same to any of us, but it was nice to catch up with the boys and spend some quality time with them. They, on the other hand, loved the "week of Mike", as Uncle Mike made it a special week of Craig's Cruisers, Spoonlickers, Seidman Park, and more. We are forever indebted to him for keeping them occupied and never realizing we were gone.
And I truly cannot even begin to thank my mom for all that she has done. Since Lincoln was three weeks old, we have had at least one doctor's appointment every week, most weeks two. She has gone to every appointment, helping me ask questions, keep Jackson occupied, document Lincoln's deteriorating health, and supporting me unconditionally. We have gotten lost in parking lots, cried in offices, and swore in "quiet rooms." Without her, I could not have survived the last four months and especially this week. She has been Lincoln's advocate and my rock. And she has watched him suffer more than any grandmother should ever have to. She deserves to hold him in her arms as much as we do. We love you so much Mom. Thank you is not even close to enough. There are no words to express how truly amazing you are, Mom.
Thanks to everyone who has offered to bring us food, visit us at the hospital, do our laundry, and drop off meals. We feel so blessed to have so much love surrounding us. Xoxo