Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Thursday, November 29, 2012

Surgery is done

Lincoln's surgery is done, and he is being brought back into his room. It was not as successful as we had hoped, but first-most, he is alive and his organs are functioning. He had to have his valve replaced, which was what we had hoped would not happen. Dr. Haw was really dissapointed that he had to replace it, but after trying to repair it three times and it leaking, he knew it was a necessity. We are so thankful for his wisdom and aggressive tactics because many surgeons wait until organs are failing and then children die in surgery. We are thankful Lincoln is alive, and so far, accepting his new hardware. This means a lot for Lincoln and us as parents, which is very sad and overwhelming. It means another surgery in his future. It means heart medication for life. It means competitive sports are out. It means weekly doctor appointments, co-ag clinics, echo ultrasounds,  and high blood thinners. So we are sad for our baby boy. But we are eternally thankful to have him here with us and hopefully soon, back in our arms. We will be at the hospital now a much longer time, at least ten days  they think.  Please pray he does well with his new valve, he does not have any complications, and that he does not contract any infections. We are not allowing people to visit him any longer because his risk of infection is so great. Xoxo thanks for all of your prayers. We need them.

12 comments:

  1. Thanks so much for this update. Today was grueling for all. Glad that he is alive!!!! The rest will be a lot to deal with but at least he is still with us! Continuous prayers!!! XOXOXO

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  2. Lisa, I was overwhelmed when I just read this I cannot imagine how your family must be feeling. I continue to pray and hope only positive thoughts for Lincoln. God bless your family. Margo

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  3. I am so glad he has made it through surgery. I can't imagine how you are all feeling and the worry with what will come. I will keep praying that he will heal quickly and you can all get back home and start a normal family life. Take care of yourself and know that we are all praying and keeping you and your family inbour thoughts.

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  4. Thinking of you and yours constantly. Thank you for your updates and we wish you the very best. Little Lincoln is so strong and an amazing rock star like you say. Hang in there momma and take care! Lots of love!

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  5. Thanks GOD! It might not be the best case scenario, but he is here and he is going to be ok. It might seem overwhelming right now, but you are the most organized person I know and I'm sure after a while you will have his schedule down to an exact science. (after all, you are Lisa Penninga!)

    I feel like this little guy is going to live a great life and grow into a happy and productive member of society. Prayers answered. :)

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    1. Lisa you are a brave, brave momma. Your little baby son is so precious and I pray you have all three of your boys back in your arms soon. Love and prayers each day.
      Anna (John’s sister)

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  7. Thank God!!! I know it's not what anyone wanted, but it is what it is. Now it's time for Lincoln to heal and get better! I know it is so very overwhelming right! One day at time! Continuous prayers for strength and healing!

    Angie, Josh, Hudson, Calvin Drake

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  8. Thank God your little boy's through the surgery. We continue to pray for you all and hope you'll see an improvement in him tomorrow. It's been a terrible day for you. Try to get some rest tonight. XXXX

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  9. I'm so thankful that he pulled through this second surgery. I'll keep praying, Lisa. I hope that your stressful, terrifying ordeal ends positively with a completely healed baby, Lincoln. Bless you.

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  10. I don't know if this helps but I had an uncle with a similar heart condition- at least I think it is based on your description- who with out the recent medical advances on valve replacement lived to the age of 65. He had a career, a house in Key West, he traveled, went to college... I could keep going. I understand your grief terror at his heart not being able to be completely repaired but it sounds like he is through the worst of it and those medical advancements keep on coming. Hang in there and if he is like my uncle he will be okay- probably more than okay but will have a wonderful, happy life. You are such good parents. We are all pulling for you.

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  11. Lisa,
    I have heard about your story from your friend Kris Schrotenboer, and I am a pastor at Hillside Church in GR. I have been praying for you and for your son, Lincoln.

    I asked the Lord to bless this surgery for him and I hope he'll continue to gain his strength as he recovers from surgery.
    May you and Lincoln experience healing and peace!
    In Christ - Daniel Bud

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