Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Sunday, March 29, 2015


Dr. Haw, Meghan, the P.A., and Dr.Schneider came for rounds this morning, and they can't believe what a rockstar Lincoln is. To be discharged 6 days after such a huge, repeated surgery is amazing. Dr. Haw told Lincoln he is a rockstar! 

We have a lot of various professionals coming in to talk to us about home care, restrictions, & his routine needs. We have to protect his sternum's restructuring, so he has a lot of restrictions that we have to enforce even if he wants to do them, including temper tantrums (should be fun!). And because we have a home monitor system & I am crazy :), they trust us to care for his INR at home. YAY! We have two follow up appointments this week, and then six weeks of restrictions until we come back to see how he had progressed & get a follow up echo. 

Praise God in protecting & lifting this sweet boy up through all he has endured, and using His timing to make the best of this awful  journey through CHD. I really did not go into this surgery with hope, and I am so thankful I was wrong.  Xoxo

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