This morning, the team had a good discussion about getting Lincoln's medications squared away. They are weaning him from the morphine this weekend (THANK GOD- I hate it), lowering his LASIK (for fluids), and still working on getting him off of the Heprin IV. His chest x-ray looked great, and they are pleased with how his heart is functioning. He was sleeping peacefully when I came in this morning, and has had some great smiles for me this morning. Dr. Mike stopped in and we discussed our game plan for the little man, as he is so developmentally behind due to his heart failure for the first three and a half months of his life. He was joking that most moms are bragging that their baby rolled over, and I can say "That's all? My baby survived two bypass surgeries in one week. He's super- hero status now!" Everything else seems pretty minor in comparison.
His tummy still seems upset, so I am excited to see him off the morphine. The potassium he is on also can upset the stomach, so we can see which is bothering him once one is eliminated. He would not take a bottle for the nurses last night, which is strange because he has never had a problem with it before. He loves his pacifier now, and it hit me this morning that it was probably harder to suck on it before with his labored breathing.
The hardest part with coming home right now is getting his Coumadin situated and leveled. There are no signs or symptoms if it is not working, which is kind of scary to me. So we will be checking his INR levels frequently to make sure he is doing well because weight gain makes the medications less productive. And as most people know, infants (normally) grow rapidly, and even though we are excited to see him grow, it makes it more complicated on his heart. And it sounds like we will be getting the co-ag machine eventually, but the cardiologists have to write a letter explaining why he needs it, which I find somewhat ridiculous. So it could be a month or two, depending on how fast the insurance board acts. So pray that they get through the paperwork fast!
Praying! Lots of work for you and Lincoln. Glad he is on the mend! XOXOXOX
ReplyDeleteWhen Colt was in the NICU, he needed a $1000 synagis vaccine (to guard against RSV which would be worse since he had holes in his heart) in order to be discharged. The hospital seemed to be having a hard time getting the permission from our insurance company, so Andy called and told the person at our ins. co. "$1,000 for a vaccine, or $5,000 per day baseline to wake up in the NICU. You pick."
ReplyDeleteGo get'em Murphs.
Xoxo.
So glad Lincoln is beginning to feel more like himself and is back in your arms Lisa! I know everything is going to be a lot of work, and u will always worry. But the wirk will soon just be a routine! :) still praying and thinking for all of you! Love the pictures of Lincoln! XOXO!
ReplyDeleteStill praying so much for little Lincoln and for the rest of you. Stay strong and rest on God. Teri
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