Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Thursday, December 6, 2012

One week later...

Exactly one week ago right now, Lincoln was prepping for surgery. What a difference a week makes.  I am so thankful that the doctors, surgeons, pharmacists, and nurses are receptive to my ideas and knowledge about Lincoln. Dr. Haw made a joke about how meticulous I am, and said we won't have to worry about dental work with this "Mum." Dr. Winters jokes about my notebook, and my list of questions each day. It is nice to see that they are receptive to our input and making jokes. Murph and I have truly appreciated the amazing care team we have here at Devos.

They are lowering his morphine today (my suggestion that Dr. Haw seconded along with the pharmacist) and they are trying a mild anti-nausea medication that has no side effects. So, I am hoping my mommy gut is right, and that will solve his feeding issues. The cardiology team also looked into my suggestion of a twice-a-day heart medication instead  of four times a day, and he will be starting that today instead of his Captapril. Once his  Coumadin levels hit two, he can come off of the Heprin drip, and we can start regulating his Coumadin INR levels. We can get one step  closer to coming home. He is currently at a 1.6. Hoping for a good day today, and we are so thankful for this sweet little boy of ours.

And when we walked in, Will, my favorite night nurse, had moved Lincoln into a crib. He looks so much cuter in a crib! We had quite a few smiles through his pacifier where you can tell is eyes are lighting up. So slowly, we are seeing sweet glimpses of our baby boy.

10 comments:

  1. Amazing how much has changed in the past couple days!! So glad that you are giving your input and that the doctors, nurses, etc. are receptive to your Momma instincts!! I hope sweet Lincoln continues to progress smoothly and that he'll be able to come home soon!!

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  2. Love the picture (and his signature hairstyle)!! Happy to hear that you are able to reduce some of Lincoln's meds so he can move closer to coming home. Prayers for a good day full of positive progress and lots of smiles! - Kristin C.

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  3. We are all living this journey through you and your words, Lisa. Most of us check your blog at least three times a day, just to make sure we didn't miss anything while we were "away." Continued prayers not only for Lincoln but for you and Murph as you face this new, uncertain reality. I know it's scary...okay, I have NO IDEA how scary it is, but our Heavenly Father does know and He will see you through each day, just as He has the past week. Still praying. ~Kris

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  4. I love that photo!! Thanks for posting it!!! Glad you are seeing him coming back to you. Glad that the doctors are listening to you as you know his needs best!! Glad he is on the road to recovery and can't wait for the post that comes with the day he comes home!!! So very thankful that God has had his hand on your baby boy!!! XOXOXOXOXOX

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  5. Not to pat ourselves on the back, but you sound just like us, and if that's the case, the Doctors are telling you what a relief it is to have parents like you to work with.

    This psalm made me think of Lincoln this morning:

    For you created my inmost being;
    you knit me together in my mother’s womb.
    I praise you because I am fearfully and wonderfully made;
    your works are wonderful,
    I know that full well.
    -Psalm 139:13-14

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  6. Good for you, Lisa. Knowledge is power and it sounds like a great medical team that listens to you and appreciates and acts on your suggestions.
    Can see the gleam now in your baby's eyes...he is heading in the right direction!

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  7. Good for you, Lisa. Knowledge is power and it sounds like a great medical team that listens to you and appreciates and acts on your suggestions.
    Can see the gleam now in your baby's eyes...he is heading in the right direction!

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  8. What a beautiful picture of Lincoln. He looks much more relaxed and peaceful! Great job listening to your instincts and yeah for the doctors for listening. Cousin Debbie. :)

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  9. Oh, those beautiful eyes! They can say SOOO much! They can tell you when he's happy, sad, hungry, full, scared, safe, but most all just a look can show soo much LOVE!!! What a sweet Picture! So glad you were able to hold him today! We're thinking of you All everyday!!! Lucy and Lenny

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