Sunday morning

Every morning when we walk through Lincoln's room, we hold our breath and hope for good news. We have not had a morning yet where we walk into to hear that Lincoln is doing great. We are still waiting, and it is mentally and physically exhausting. This morning, Lincoln's cough is more congested, and he is in obvious discomfort every time he coughs. He had a hard time taking his oral medications, and clearly something is not right. He looks terrified and anxious, so they are wondering if he could be having withdrawals from the Fentynl. They are giving him a strong antibiotic to hopefully help him along and an anti-anxiey med to ease him and his nerves. They are testing him for infections again, which means he is in isolation and we all have to wear gowns, gloves, and masks until the results come back.

The good news is his heart and lungs look great. Dr. Haw is very pleased with how his valve looks as well as the minute leaks. Tomorrow they want to take out his pacers, which is a great sign of their comfort of his heart functioning. Pharmacy is going to come talk to us about lifestyle changes, nutrition, and breast feeding a baby on blood-thinners. Lactation is also going to come see me and help me to figure out my diet restrictions (so far, it looks like four pages worth). Between the two, I need to figure out what is more important -the antibodies in breastfeeding to keep him healthy or the consistency of formula for his co-ag levels. Lots to think about.

So more short-term complications for today, but hoping the afternoon will get better.  And hoping for negatives on the viruses, so he can see our faces again!