Oh goodness, where to begin? I have seen a Speech Therapist, Cardiologist, Dietician, Internist, and Lactation Consultant since morning rounds at 8:30. Lincoln still will not eat and has zero interest in it. In fact, he gets physically upset about it. And we cannot figure out why. All of the different medical perspectives this morning threw out different ideas, some of which brought me to tears. The good news is that when they tube feed him, it sits well with him, and he is now sleeping with a full belly. So, we are lessening his anti-anxiety meds to see if it is just making him too relaxed.
The good news is that the hospital is working on a home monitor system for us where we can pin-prick him each day to monitor his levels ( oh yay lucky me!). That will make it easier to sleep at night for us to know that his levels are at a safe number. It can vary between 50 and 80, but we would like to keep it at a consistent level. Today we are at 65, so that is really good. A small interesting fact for the medically-interested people reading, Lincoln's heart now has a clicking sound that he can actually hear. We thought that was interesting. Everyone has been wanting to listen to his heart - we finally figured out why.
So, we shall see. More waiting :)