Oh goodness, where to begin? I have seen a Speech Therapist, Cardiologist, Dietician, Internist, and Lactation Consultant since morning rounds at 8:30. Lincoln still will not eat and has zero interest in it. In fact, he gets physically upset about it. And we cannot figure out why. All of the different medical perspectives this morning threw out different ideas, some of which brought me to tears. The good news is that when they tube feed him, it sits well with him, and he is now sleeping with a full belly. So, we are lessening his anti-anxiety meds to see if it is just making him too relaxed.
The good news is that the hospital is working on a home monitor system for us where we can pin-prick him each day to monitor his levels ( oh yay lucky me!). That will make it easier to sleep at night for us to know that his levels are at a safe number. It can vary between 50 and 80, but we would like to keep it at a consistent level. Today we are at 65, so that is really good. A small interesting fact for the medically-interested people reading, Lincoln's heart now has a clicking sound that he can actually hear. We thought that was interesting. Everyone has been wanting to listen to his heart - we finally figured out why.
So, we shall see. More waiting :)
A monitor system would be good. I'll bet that would allow you to go home faster than if you didn't have one. Always thinking about you. XX
ReplyDeleteI've known adults with the mechanical, clicking valve sound. What a marathon for you all. Praying daily.
ReplyDeleteI finally was shown how to comment on a blog! (The last of the dinasaurs!) Thanks for the updates, we sure are praying alot for your little guy. Hope he can get his appetite back and get strong enough to come home soon. Let me (us) know what we can do to help. Do you need some special food made that would meet you dietary restrictions? You can call me, e-mail, etc.
ReplyDeleteLove+ prayers,
Aunt Cheri
I think the clicking sound will work out well for him. He can claim he' s a cyborg to try and pick up girls. Tony and I will work on a list of pickup lines for him to use web he is older. Something like: Hey baby, when I look at you, you can hear my heart skipping a beat.
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