Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Saturday, December 1, 2012

Saturday afternoon

I sent Murph home to take a break, so Lincoln and I have been hanging out with a new nurse today (who I have won over and she agrees Lincoln likes his momma close by).  This morning was rough. Still waiting to see if all of the fluctuation in levels were just a fluke or are something more serious. More waiting -something I am NOT good at. They will test again tomorrow and do more x-rays to see how he is doing. This whole experience keeps teaching me to stay in the moment because when I plan ahead or think what ifs, things change in the meantime and it was a waste of my much-needed energy. He has been off of his Fentanyl today and doing pretty well without it (hoping to keep him off of it-it is stronger than morphine!). His stomach was really upset and gassy, but after a suppository, he has been doing much better. His breathing is labored, but the doctor thinks the air pocket by his lung should heal itself. He took four one-ounce bottles of pedialite and has been more alert today than all week. His co-ag levels are in the therapeutic range, which is really good for his valve and heart. He is finally liking his pacifier again, which is really helpful to soothe him since we can't pick him up. His cough looks excruciating when he has to cough because of his chest. I guess it is normal and needed, but I feel for the little man every time. We are trying to keep our spirits up, especially for him.  Lincoln needs us to be strong to help him fight through this and start recovering. And Murph and I will need support from people who truly care about us and Lincoln's well-being. So many of you have just been amazing -we truly appreciate it. Xoxo

6 comments:

  1. So glad to see that picture. Glad that you being close is helping him stay calmer now. Praying for his quick recovery. Xoxoxo

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  2. This is such a heartening post. Things seem a little better. Bless you guys. We're always, always praying.

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  3. Praying and praying!!! I am here for anything you need! - Kristin C.

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  4. Lisa, We will keep Lincoln and your beautiful family in our prayers. Linda Scranton (Kara's mom)

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  5. Lisa,
    You are a wise and wonderful mom. Mommies do know best. I am so glad you were able to comfort your little guy. Take care of yourself too.

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  6. We are here for whatever you need as well - clean clothes, a toothbrush, snacks...it's a helpless feeling to know you are going through all of this and so many of us want to help but don't know how. I guess in the weeks and months ahead, that's when we can be there for you all. Tonight, we'll say another prayer (one of about a hundred today) and dream of better things tomorrow. ~Kris

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