Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Tuesday, December 4, 2012

Tuesday rounds

The docs are pleased with how Lincoln is doing. His biggest hurdle right now is getting his Coumadin levels rights and getting his last central line out. They also took him off of the LASIK IV and are giving it to him orally now to see if he really needs it.

The best news of the morning is that I can feed him again! No more bottles! His fluid restriction has been liberalized and they all realized this morning  (after the nurse and I pointed out) that he's ticked off, not wanting the bottles from me. He was so happy to nurse, and he even gave us his first smiles right after. It is not easy to hold him, nurse him, or change his diaper with all of the cords and wires (he still has at least six), but we are learning how to maneuver him around a little better. So, this mommy is feel 80% better than yesterday- what a difference a smile can make!

We now hope that his levels stay consistent -his co-ag levels are extremely important to monitor and stabilize. Without them at a therapeutic level, he can have blood clots form to his mitrovalve and have a stroke. So this is the first step in getting his levels stable, and then we will have to check them weekly if not more, depending on how he does. They are still looking into a machine, but Dr. Mike thinks we will still want or come down to DeVos since it is such a serious issue. I would agree :)

Lincoln (and I ) will be on a strict Vitamin K diet, as it fluctuates his levels tremendously. Anyone that knows me well knows I love fruits and vegetables, which have an abundance of vitamin K. So I am mourning salads, broccoli, my omega-3 vitamins, and having to do  a lot of math with micrograms. The good news is Dr. Haw and the cardiology team requested that we have a good daycare center with educated, trained teachers, not just an in-home daycare. Thank God for Big Steps Little Feet where we will have the best care for little man when I have to go back go work. Thanks again for all of your prayers and support - it means the world to us!

6 comments:

  1. Soo happy to hear such great news!! Amazing what a smile will so for the soul!! God bless all of you!!! Lucy and Lenny

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  2. So happy you get to nurse and you got that smile you have been needing for day now. I've been praying for that specifically too. Yeh!!!! Glad it seems like he is on the "healing train" lol. Can't wait to come and see you tomorrow.

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  3. Lincoln's smiling, you and Murph are smiling, we're all smiling!!!!

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  4. Who knew a smile could make your whole week better? Blessings come in small packages, don't they? LOVE IT!

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  5. SOOOOOO Glad you got the smile you needed! Hopefully its just the first of many! Still praying and thinking of you and and Lincoln!

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  6. So happy for you. I am sure Lincoln is loving having his mommy be able to care for him so much more. And I know mommy is too!! You are amazing with your strength. Still praying for all of you.

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