Our Warrior's Battle Against CHD

Our Warrior's Battle Against CHD

Sunday, December 2, 2012

What really matters

In 2013, Murph and I will have been together 16 years. And despite going through Hell this week, our relationship has never been stronger. He and I (somehow) have managed to support each other through all of this, and became even closer. He has always been my best friend, but right now, he is doing an outstanding job taking it all on-  and holding it together while I fall apart. We are both realizing how so much in life just does not matter. When our baby is sick, nothing else really matters except trying to get him better.

We have realized that some people will not understand what we are going through and now that our life is in such chaos, we only need people in our life who will lift us up, who are here for us and our children. Thankfully, we are blessed with so many loved ones around us who do just that.  Eating dinner tonight, we were reading the blog comments, texts, and Facebook posts from so many friends and family members, trying  to lift us up. We are so thankful because that is what we need. "Family isn't always blood. It's the people  in your life who want you in theirs, the ones who accept you for who you are. The ones who would do anything to see you smile and who love you no matter what." And so many of you are now family. Xoxox

Lincoln's fight to live in his short four months has been excruciating for him and us. I found a quote on Pinterest that says "Every day may not be good. But there is something good in every day." That has been our mantra this week -even the small blessings need to be admired and cherished. So today, I laughed with my husband. It's the first time in weeks. And it felt great. And I comforted my baby boy in a way no one else can, not even the surgeons or specialists. All day long, he was alert enough to finally look at me with real eyes (not the dazed, doped-up look). And for those things I am grateful.

9 comments:

  1. Perfectly said. Glad you are seeing more of your"not doped up" baby. Glad you laughed today. Hope you are eating better too. I know that can be a hard task. I'm coming over this week to do laundry let me know if Wednesday or Friday works better. I have Wednesday off and Friday I get done early. If you need me to do anything for the boys I can all day Wednesday or Friday after work at 2:30 Let me know when you can. Xoxoxoxo

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  2. As soon as I get up I check to see you're all OK. Good. Now I can go have my coffee! I'm so glad Lincoln can really see you're there now. That will comfort his little soul.

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  3. Mommy knows best!!!! I'm glad Lincoln is comforted by you and looked at you with "his" eyes! I wake up in the morning and check your blog, and throughout the day! Always praying, always thronging of you, Lincoln, Murph, the boys and the whole family. Continue to stay strong! We love you guys! Angie Drake

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  4. Hello, my sister is a teacher with you and sent this on to me. I have a little email prayer group and today I will send out a prayer request for little Lincoln and for you and Murph and your family. Meanwhile, you are in my prayers and I will continue to follow your blog and pass on the news as Lincoln and you all get through this.

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  6. Consistently in our thoughts and prayers. XO
    ~Kozal's

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  7. Consistently in our thoughts and prayers. XO
    ~Kozal's

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  8. Very well said Lisa!! The only thing in life that really matters in life is FAMILY, and you have the closest and most amazing family I know!!! We are praying for you all everyday!! Give you're mom a huge hug for me! I know you would never make it without her!!! We miss U All!!! <3 Lucy and Lenny

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  9. Very well said Lisa!! The only thing in life that really matters in life is FAMILY, and you have the closest and most amazing family I know!!! We are praying for you all everyday!! Give you're mom a huge hug for me! I know you would never make it without her!!! We miss U All!!! <3 Lucy and Lenny

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